Welcome to My CureSearch Walk Page
My youngest daughter Sydney, was diagnosed with Philadelphia Positive Acute Lymphoblastic Leukemia in March of 2013, just shy of her 4th birthday. This is an extremely rare form of Cancer, only effecting 3% of all children diagnosed with Leukemia and other blood Cancers. After completing her initial treatment protocol in early August 2015, she unfortunately relapsed in her central nervous system just 22 days later, prompting her doctors to begin prepping her for a bone marrow transplant. She successfully underwent the transplant on Christmas Eve 2015 and she continues to improve, though her recovery is ongoing and continues to present her with challenging side effects.
Now 9 years old, she has had to deal with much more than any child should. The unfortunate fact is she is not alone. 43 Children each day are diagnosed with some form of Cancer - that is nearly 15,700 families per year that are given the same devastating news we received in 2013. Each year, there are an estimated 40,000 children being treated for Cancer. The average age at diagnosis is 6, and 1 out of every 8 children that are diagnosed, will lose their battle. Cancer is the number one disease killer of children.
This is why my family has become so passionate about supporting CureSearch for Children’s Cancer. It was through their research and development that the drug was developed to counteract Sydney's rare sub-type of Leukemia. Just a short 7-10 years prior to Sydney’s diagnosis, this drug was unavailable and her diagnosis would have likely been terminal. My family and I owe CureSearch a debt that we can never repay. All we can do is try to raise funds to support their efforts to help improve the odds for all children with Cancer.
Children’s Cancer research is grossly underfunded. The National Cancer Institute indicates that only 4% of funding is dedicated to children’s Cancer, while 96% is provided to adult Cancers. Only 3 pediatric Cancer medications have been developed since 1995 – fewer than 10 since 1980. The need for funding is great.
CureSearch receives no government funding and relies solely on the gifts of others to continue their all too important research, development, and innovative clinical trials. It is their mission to change the odds for those children most at risk. Sydney is one of those.
Since creating Hope for Sydney in 2013 and joinging forces to support CureSearch, we have successfully raised more than $115,000. With your help, Hope for Sydney has been the top fundraising team in Pittsburgh and number 1 nationally in 2015, 2016, & 2017! Please consider donating to my page again this year and helping to increase the odds for those 43 children diagnosed today, tomorrow, and each future day, until we can one day have no family hear “Your child has Cancer.”
Follow our progress on Facebook at: https://www.facebook.com/teamhopeforsydney
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