2019 Pittsburgh CureSearch Walk

Sydney~January 2019
Sydney~January 2019

Hope for Sydney

2019 will be our 7th year walking for and supporting CureSearch, and we have successfully raised more than $145,000! Thank you for your past and future support!

We formed team Hope for Sydney in 2013 after our daughter Sydney, then 3, was diagnosed with Philadelphia-positive acute lymphoblastic leukemia (Ph+ ALL). The Philadelphia chromosome is a rare subtype of leukemia, only present in 3% of children. Sydney completed her initial treatment protocol in August 2015, only to relapse in her central nervous system 22 days later. Sydney received a bone marrow transplant on Christmas Eve 2015; a perfect day to receive the gift of life from a complete stranger.

2018 was a tremendously difficult year for Sydney. She was admitted to the hospital on June 4th for unexplained swelling and severe back pain. Turns out, almost every disc in Sydney’s spine had a compression fracture; a result of chronic steroid use making her bones weak and brittle. And the swelling was Thrombotic Microangiopathy (TMA), a very rare disease which impacts your kidneys. After several months of trying to remove over 18 pounds of excess fluid weight with diuretics Sydney had to begin daily dialysis. Dialysis has worked tremendously for fluid removal and now is down to three days a week. However, Sydney’s kidneys have not rebounded and the Renal doctors don’t suspect they ever will due to the damage from the TMA. Sydney will need a kidney transplant once it is determined the TMA is controlled, her respiratory status is improved and she is physically stronger.

Today, Sydney is more than three years post bone marrow transplant and she remains CANCER FREE! However, her journey continues to get longer and harder, all a result of the toxic treatments needed to get to a cancer free life. After nearly 10 months in the hospital and suffering from back pain and swelling, Sydney is barely able to stand and walk and is on continuous oxygen support. Our baby is the strongest person we know and she has truly amazed us – but how much more can she handle? We can’t begin to share every detail of how Sydney has been impacted by the very treatments that saved her life, and now threaten it.

We are continuing to live a nightmare and it’s not cancer. This is why we support CureSearch - so other children can have hope for a cancer free future with less toxic treatments! Please join us to help fund research to find cures for pediatric cancers, so that one day this nightmare won’t happen to other children and their families.

You can also follow our team on Facebook at: www.facebook.com/teamhopeforsydney

Thank you for your support!

 

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CureSearch for Childrens Cancer

PO Box 45781, Baltimore, MD 21297-5781
jennifer.murphy@curesearch.org | (240) 235-2211